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Frequently Asked Questions about Restless Legs Syndrome and Periodic Limb Movement Disorder

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Frequently Asked Questions about Restless Legs Syndrome & Periodic Limb Movement Disorder

How Common are RLS and PLMD?

Restless Legs Syndrome

Five to 10 of every 100 people experience the discomfort of pain of RLS at some time in their lives.  Severe cases of RLS, although not common, often run in families.  The disorder is more common in older individuals but can occur at any age in both men and women.   It is more common during pregnancy, particularly during the last 6 months.  Over the course of the years, the problem may come and go without any obvious reason.

Periodic Limb Movement Disorder

PLMD is rare in people under 30 years of age but becomes more common as people grow older.  PLMD affects 5% of people age 30 to 50; 29% of people age 50 to 65; and 44% of people over age 65.  Men and women are equally likely to be affected by this disorder.  PLMD contributes to the inability to sleep in 20% of the people who have been diagnosed with insomnia.

What Causes These Disorders?

Restless Legs Syndrome

Approximately 30% of cases of RLS have a hereditary cause.  This means that in 30 cases out of 100, the disorder has been passed through the genes of either the father or mother to the child.  The cases of RLS that run in families often have more severe symptoms and are often more difficult to treat.

The causes of the other 70% of RLS cases are not clearly known.  A number of situations seem to have a connection with or may provoke the symptoms of RLS.  These situations include poor blood circulation in the legs, nerve problems, muscle disorders, kidney disease, alcoholism and vitamin or mineral deficiencies.  Other factors that may trigger the syndrome are stopping or starting certain medications, caffeine consumption, smoking, fatigue, a very warm environment, or prolonged exposure to cold temperatures.

Periodic Limb Movement Disorder

The cause of PLMD, like that of RLS, is unclear.  The same factors that are associated with RLS are also associated with PLMD.

Periodic limb movements are more common in people who have kidney disease or narcolepsy.  Some antidepressant medications may also increase the frequency of limb movements.

How are These Disorders Diagnosed?

Restless Legs Syndrome

Before prescribing a specific treatment, the clinician must make a proper diagnosis.  RLS has such unique symptoms that diagnosis of this disorder can often be made on the basis of patients’ descriptions of their symptoms.  Some words used to describe these symptoms include “creepy, crawly, pulling, and gnawing.”  These feelings create an almost irresistible need to move the affected limb.

Another sign that points to a diagnosis of RLS is that movement of the affected limb relieves the painful or uncomfortable feelings.  However, healthcare providers need to obtain a careful medical history and perform a physical examination to exclude other problems that may be mistaken for RLS.

Periodic Limb Movement Disorder

PLMD, on the other hand, often requires more extensive studies to make a proper diagnosis.  People with PLMD are often unaware of their nighttime movements and may instead complain only of restless sleep or excessive daytime sleepiness.  They may need to have their nighttime sleep observed and studied in order to discover the cause of their problem.

How are These Disorders Treated?

The first step in treating RLS or PLMS is to determine whether underlying causes (such as anemia, diabetes, arthritis, lung disease, or the use of antidepressant medications) are contributing to the unwanted movements.  Sometimes proper diagnosis and treatment of these underlying problems result in a lessening or disappearance of the symptoms of RLS and PLMN.  However, patients often find that their disturbing movements continue even after they receive proper treatment of their underlying conditions.  When this occurs, a number of different treatments may be tried.

Restless Legs Syndrome

Home remedies are effective for some people with RLS. These remedies include a hot bath, leg massages, a heating pad, ice packs, aspirin or other pain relievers, regular exercise, and the elimination of caffeine. Vitamin E and supplemental calcium have also helped some people, although no studies have proven that these substances are effective.

At times, home remedies are not effective, and clinicians must treat RLS with prescription medications.  Several medications can be helpful. Because a particular medication may help one patient and not another, people with RLS may need to be patient as the healthcare provider seeks the right type of drug.  The effectiveness of a particular drug will depend on the severity of the condition; the patient’s other medical problems, and other medications that the patient is taking.

Periodic Limb Movement Disorder

Many people with PLMD need no treatment because they sleep through the limb movements and have no other symptoms such as excessive daytime sleepiness.  Others with PLMD who sleep lightly and are easily disturbed by the movements may be able to reduce or eliminate their sleep complaints by improving the soundness of their sleep.  The following sleep hygiene rules (behaviors that help improve sleep) can help a person sleep more soundly.

Good Sleep Habits

These guidelines help most people sleep well:

  • Get up about the same time every day.

  • Go to bed only when sleepy.

  • Establish relaxing pre-sleep rituals such as a warm bath, light bedtime snack or 10 minutes of reading.

  • Keep a regular schedule.  Regular times for eating meals, taking medications, performing chores and other activities help keep our inner checks running smoothly

  • Avoid caffeine within 6 hours of bedtime and don’t drink alcohol, especially when you are sleepy.  Even a small dose of alcohol when your are tired can have a potent effect.  Do not smoke before bedtime.

  • Try to nap at the same time every day.  Mid afternoon is best for most people.

  • Use sleeping pills conservatively.  Most doctors seldom prescribe the use of sleeping pills for more than 3 weeks.  Do not take sleeping pills after drinking alcohol.

Good sleep hygiene and medication, both of which are aimed at improving the soundness of a person’s sleep, may help the patient but do nothing for the complaints of the bed partner because they do not reduce the leg movements. An ideal treatment would eliminate these bothersome leg movements entirely.  Because we don’t clearly understand the cause of the leg movements, eliminating them is difficult.  Reports indicate that several different drugs appear to reduce patients’ leg movements, but many of these drugs have not been carefully studied in terms of their effectiveness for treating PLMD.

One simple remedy for people who take antidepressant medications may be to change their medication.  Some antidepressant medications make PLMD worse, so changing the medication to another antidepressant may help reduce the limb movements.

 



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